H.Res. 1295

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1295 Introduced in House (IH)]

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119th CONGRESS
2d Session
H. RES. 1295

Expressing support for the designation of May 17, 2026, as ``DIPG 
Awareness Day'' to raise awareness and encourage research into cures 
for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in 
general.

_______________________________________________________________________

IN THE HOUSE OF REPRESENTATIVES

May 15, 2026

Mrs. Dingell (for herself, Mr. McCaul, and Mr. Joyce of Ohio) submitted 
the following resolution; which was referred to the Committee on Energy 
and Commerce

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RESOLUTION

Expressing support for the designation of May 17, 2026, as ``DIPG 
Awareness Day'' to raise awareness and encourage research into cures 
for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in 
general.

Whereas diffuse intrinsic pontine glioma (DIPG) affects 200 to 400 children in 
the United States each year with certain regularity;
Whereas brain tumors are the leading cause of cancer-related death in children;
Whereas DIPG is the second most common malignant brain tumor of childhood;
Whereas DIPG is the leading cause of childhood death due to brain tumors;
Whereas the median survival time of an individual with DIPG is only 9 months 
postdiagnosis with treatment;
Whereas 5-year survival of an individual with DIPG is less than 1 percent;
Whereas, given the age at diagnosis and the average life expectancy, the number 
of life years lost annually because of DIPG is approximately 24,000 
years of person life lost (calculated as the number of children 
diagnosed by average of male and female life expectancy from that median 
age, 300 x 80 = 24,000 years of person life lost annually);
Whereas prognosis has not improved for children with DIPG in over 40 years; and
Whereas Federal funding for research for pediatric cancer should be increased to 
address the level of unmet medical need for this vulnerable population: 
Now, therefore, be it
Resolved, That the House of Representatives--
(1) supports the designation of ``DIPG Awareness Day'';
(2) encourages all people of the United States to become 
more informed about diffuse intrinsic pontine glioma (DIPG) 
pediatric brain cancer, and the current challenges to the 
medical research system in designating sufficient research 
funding for pediatric cancers;
(3) supports expanded research to better understand DIPG, 
develop effective treatments, and provide comprehensive care 
for children with DIPG and their families; and
(4) encourages public and private sources of research 
funding to elevate their consideration of the mortality rate of 
a type of cancer, as well as the life-years lost, as 
significant factors to be considered during the grant 
application process.
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