H.Res. 1318

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1318 Introduced in House (IH)]

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119th CONGRESS
2d Session
H. RES. 1318

Expressing support for the designation of the month of May 2026 as 
``Progressive Supranuclear Palsy and Corticobasal Degeneration 
Awareness Month''.

_______________________________________________________________________

IN THE HOUSE OF REPRESENTATIVES

May 21, 2026

Mr. Subramanyam (for himself, Ms. Scanlon, Ms. Bonamici, Mr. 
Walkinshaw, Mr. Quigley, Mr. Ryan, Mrs. Foushee, Ms. DelBene, Ms. 
Barragan, Mr. Bacon, Ms. Scholten, Mr. Lawler, Ms. Garcia of Texas, Ms. 
McClellan, Mr. Stanton, Mrs. Dingell, Ms. Castor of Florida, Mr. 
Vindman, Mr. Beyer, Mr. Cleaver, Mrs. Fletcher, Mr. Pappas, Mr. Scott 
of Virginia, Ms. Norton, Ms. Leger Fernandez, and Ms. Salinas) 
submitted the following resolution; which was referred to the Committee 
on Energy and Commerce

_______________________________________________________________________

RESOLUTION

Expressing support for the designation of the month of May 2026 as 
``Progressive Supranuclear Palsy and Corticobasal Degeneration 
Awareness Month''.

Whereas progressive supranuclear palsy, often referred to as ``PSP'', and 
corticobasal degeneration, often referred to as ``CBD'', are rare, adult 
onset, rapidly progressing neurodegenerative disorders that affect 
multiple areas of the brain and cause complex symptoms and care needs;
Whereas although some symptoms may appear similar to that of other neurological 
diagnoses like Parkinson's disease and frontotemporal dementia, 
progressive supranuclear palsy and corticobasal degeneration are 
distinct diseases with their own unique trajectories and care needs;
Whereas while estimates vary and the conditions are frequently misdiagnosed, 
approximately 30,000 Americans are living with progressive supranuclear 
palsy and 2,000 Americans are living with corticobasal degeneration;
Whereas delays to both accurate diagnosis of progressive supranuclear palsy and 
corticobasal degeneration and access to neurology professionals 
specialized in these diseases are common, causing confusion, anxiety, 
and frustration;
Whereas progressive supranuclear palsy and corticobasal degeneration can cause 
significant difficulty with movement, balance, speech, swallowing, 
cognition, vision, mood, and a variety of other complex symptoms;
Whereas progressive supranuclear palsy and corticobasal degeneration are 
aggressive in their progression, with most individuals becoming 
dependent on care in 3 to 4 years and having an overall life expectancy 
of 7 to 8 years from symptom onset;
Whereas there are currently no disease-modifying treatments for progressive 
supranuclear palsy or corticobasal degeneration;
Whereas more research is needed to understand the roles of environmental factors 
and genetics in why people develop progressive supranuclear palsy and 
corticobasal degeneration;
Whereas there are countless family caregivers, friends, and loved ones whose 
lives are greatly affected by progressive supranuclear palsy and 
corticobasal degeneration;
Whereas additional research, support services, and education are needed to 
maintain quality of life for those affected by the disease, lead to 
better treatments and prevention of complications, and find cures for 
progressive supranuclear palsy and corticobasal degeneration; and
Whereas the establishment of the month of May 2026 as ``Progressive Supranuclear 
Palsy and Corticobasal Degeneration Awareness Month'' will benefit 
individuals diagnosed, families, healthcare professionals, and 
communities across the country and further bolster awareness of the 
diseases: Now, therefore, be it
Resolved, That the House of Representatives--
(1) supports the designation of ``Progressive Supranuclear 
Palsy and Corticobasal Degeneration Awareness Month'';
(2) supports the goals and ideals of ``Progressive 
Supranuclear Palsy and Corticobasal Degeneration Awareness 
Month'';
(3) supports research on diagnosis, prevention, treatments, 
and cures for progressive supranuclear palsy and corticobasal 
degeneration;
(4) recognizes the strength and resilience of the 
progressive supranuclear palsy and corticobasal degeneration 
community; and
(5) commends the individuals, families, volunteers, 
healthcare professionals, researchers, and organizations across 
the country who are working to improve the lives of people 
living with progressive supranuclear palsy and corticobasal 
degeneration.
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